Friday, June 21, 2013

So just what do I have, and what's gonna happen?

This is my second entry and I figured I'd spend a little time talking about what I have and what the prognosis is.  As I think about the last few weeks I realize just how crazy the ride has been and how unbelievably understanding so many people have been.  So let's start from the top shall we...

I have throat cancer in the tonsil area as well as the lymph node on the left side of my neck.  Funny thing when I tell people face to face everyone stares down to my neck like they expect to see some massive tumor poking out the side of my head.  It's in there, trust me, i just have enough fat to cover it up so you can't tell.  It's stage 3 cancer and it will be treated with Chemo and radiation simultaneously over 7 long weeks.  The stage 3 piece brings up a funny story about the type of people I work with.  Let me share...

I get a call from a senior sales executive who I have a long term connection to the other day when he heard the news.  First off, I greatly appreciated the call from him.  For the purpose of this story let's call him Johnny.  Now, let's just say you don't get to his level without being able to tell a story or two, listen to your 'customer' (me in this case), and make the person you are talking to feel like you really understand what their issue is and convince them that you have just what they need.  So as I am telling John about the diagnosis I mention it is stage 3.  At that point, John says, "oh man, stage 3, that's great. I thought you were going to say it was stage 4, then I was going to tell you everything will be ok as I hang up the phone and say to myself 'oh shit, you are screwed'.  I hadn't laughed about the cancer until that comment was made.  It lifted me up at a time I really needed to be lifted, and here's why I needed just that comment...

On Tuesday when I was told I had cancer, the oncologist from Foxboro I mentioned earlier handed me my written report.  As I scanned it I came across the line "survival rate for this diagnosis is 50%".  I pointed to the line on the report as I showed Denise.  My legs went weak and my head was spinning.  I was still sure I would be on the right side of the 50, but holy freaking cow, if that coin lands on the wrong side, this isn't working out the way I had scripted it.  After all, I still had plenty of burnt burgers to be had at Ed's house and plenty of boys to scare away from my daughters to be checking out of life so soon.

I went to work the next day Wednesday and didn't say anything until I wrote an email to five people just letting them know I may not be as responsive to their requests as I normally like to be and mentioned the diagnosis.  From that point on, word spread and I was overwhelmed with well wishes and comments that everyone was going to be there to help fight the fight.  It was in one word AWESOME.  I sent the email and literally ran from my office because I knew Joan and Susan were going to see it and come bombing down to my office and I just wasn't prepared to talk about it just yet.  Not at 50% survival rate I wasn't.  I needed to learn more before I discussed it with them or anyone. Which leads me to share another story to show the type of people I work with and why they make it impossible to have anything other than a positive outlook on things.

It's Thursday morning and I see one of our executives in the hall who knows about the diagnosis (he was on my first email to the 5 people I support.  He walks right into my personal space (so now everyone knows who he is, right), and just looks at me and says "so what the hell is going on".  We talk, I tell him, he stares through me like he's reading my mind, and says "Dana Farber, good!  They are the best, you'll beat this.  Take whatever time you need, it's not like you add value here anyway", turns and walks away.  If you work at my company and didn't know who I was talking about by my first comment, you sure as hell know now.  Net is, the people I work with are uncompromising, opinionated, aggressive, and combative.  But most importantly, they are some of the most caring people I know.  If you are lucky enough to work with people like this then kudos to you for picking a great place to be.  If you aren't, I am sorry but keep trying!

It's a little after 10am and I get the call I knew was coming.  It's Joan and Susan.  Two of the nicest (if they like you of course) people in the world.  They are like my younger sisters to me.  Anyway, I'm still at 50% but have been telling people it's 80% plus just to make everyone, including myself, feel better about the whole thing.  I walk down to them and I get directed to an empty office.  I get a hug from both of them and I start hearing sniffles (some were probably mine starting up to).  I said "call me back when you pull yourself together" and went back to my office.  I couldn't deal with that just yet.  Not until I knew more.  10 minutes later I got summoned back to the principles office and we talked.  Each time I talked about it, I felt more at ease discussing it.  That's one thing I can tell anyone dealing with something like this.  Talk about it.  If you have to cry, cry.  If you are like me and don't want to, then don't.  Take a day or two, process it, and then share.  It gets easier to accept as you go and discuss it more.  To me that is good.  Now you can focus not on the why me, or the how did it happen, but instead you focus on HOW DO WE KICK THE CRAP OUT OF THIS THING.

I mentioned in my last note I told my parents.  I also called my brother to let him know and I struggled with that conversation because it was only the second person I told.  My wife told her family and now knowledge of my battle has made its way to family, friends, and coworkers.  For family members who read this, you know how quickly the cousin train runs when a Shruhan hops aboard!  The outward show of caring, positive comments, and well wishes has been so energizing I can't tell you.  I'm learning a lot about how much it means to have people just share a quick note or call to tell you they are thinking of you.  I will be sure to do more of this myself, something I know I don't do enough.

So what's a good way to wrap up my second note.  Oh yeah, I went to Dana Farber one week after hearing my 50/50 prognosis.  The Dr at Dana Farber kept saying, "so if you choose to go with us".  I finally cut him off after the third time and said 'hey doc, you had me at hello.  can you stop saying that and get to the good stuff!'  At which point he said, and I'll remember his voice ringing in my head forever, "well, it's going to be a long year, but I would say officially 80% success, unofficially 90% PLUS!!!  He said a bunch of stuff after that, something about feeding tubes, severe pain, controlling pain blah blah blah.  I said 'sorry, you had me at hello but you lost me at 90!'  I'm in, let's get going....

So the adventure begins on the 25th with my first treatment.  A 6-8 hour chemo drip with a side order of radiation!  Bring it on and let's bake this thing!  Talk with you all soon.  Please leave comments, jokes, funny stories etc. on here and remind people to get on and share!!

5 comments:

  1. Good luck Mark. And be aggressive with it like it was our worst competitor.

    Bring a good book to your first treatment, it is a good way to be distracted.

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  2. I am testing this before I write due to I wrote a book this morning hit publish and it didnt work, I was so proud of myself you would have laughed. Going to try again. Stay tuned.

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  3. PS this is your favorite sister in law I signed up on AIM my name is supposed to be Welbys favorite Sista....lol I dont know why I got all those letters and numbers you will figure out who I am by what I write....lol.

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  4. So I am back on Mark's Blog on your first day of treatment. Since I am the oldest and favorite sister in law I get to go first as I see my other sisters have not done this yet? Whats up with that? Anyways I am just coming out of the fog and the denial of hearing Marks diagnosis (no I am not wearing Jeans rose colored glasses). When Denise called me, to say I was stunned does not even make sense. Then that went from fear to anger. All I kept thinking was this is not fair especially to Mark, the nicest kindest smartest bubbleburster I know. We will get back to bubbleburster later. I cried and sobbed for about a week and a half. I was pissed and if you know me my family says I go from zero to 60 in a split second. So my Mark (we have two in the family) told me to pull myself together, that Mark Petit and Denise were handling this way better than me. I got mad at that and asked how he knew that as we had not seem them in a bit. I knew he was right I did need to get it together because I know that Mark is going to need all the support and strength he can get from all of us!! I sure do hope that more people write on here so we can share the funny stories, jokes, and good times that we all have with him....here goes my first story. It goes way back. I have known that Mark Petit is a class act for about 29 years now. Anyone that marries 4 women and puts up with it is a saint in my eyes. Yes he married all of us sisters when he married Denise and of course I am his favorite probably because for the most part I stay out of his business. LOL. However this almost did not occur. 29 years ago I had just given birth to my first born son. The nurse came into my room and said a tall young man had just come in to see me and brought flowers. I didnt know who she was referring to. She brought the flowers in with a personal note written by Mark congratulating me on the birth of Ryan. I asked why he didnt come in to see me. She responded that he believed I would not see him. Apparently my young sister had a momentary lapse in judgement and without consulting with me had broke up with him. They were very young and in high school I believe and it was probably over something silly I dont even remember. What I do remember is thinking when I get out of this bed and off these childbirth drugs I need to find my sister and smack her. Mark Petit had me at "The Flowers". I thought what a class act, he is a keeper for my sister. The poor guy drove down to Norwood Hospital after my sister broke up with him, spent money he probably didnt have to buy me flowers. Well needless to say the breakup didnt last long and I am forever greatful. As I said class act, I know that no matter what happens I can go to Mark, I may not like his answer (but I always really do). Mark has done more for me that I can even write but I will share daily/weekly some of things I am greatful for Mark, are you a little concerned? Lol. The first night after Denise telling me Mark had cancer I went to bed but never fell asleep until some time after 3:30 am. I was awake thinking about all the great great times we had all the memories, his girls being born, our famous vacations, the beachhouse. I layed there for 6 hours laughing my ass off and then crying so hard I couldnt breath. I got that all out of my system so now I am prepared to fight this battle with him. Whatever you need Mark I dont care how big or small it may seem you need to reach out and ask just like your friend Tom told you. This Blog idea is genious and I know that it was a step out of the box for you. I am so proud of you that you did it, I think its a fantastic idea to keep in touch with you daily. Who would have known that you are an amazing writer, maybe you should change professions? Become an author? Your blogs leave me looking for more, I laugh, I cry, I laugh again. Your amazing, I love you, the girls, and Denise. Fight the fight Brother and know that myself, Mark, Ryan,Kristen, Allyson, and Kevin are with you all the way!!!!

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    1. Mark-this blog is great! Keep the positive thinking! I Was diagnosed in 2009 with Leukemia. IT was a shocker. I didn't say anything for a couple of days. I needed 7 blood transfusions-so I had to tell my family. I am at Dana Farber ever 4 months. I take oral chemotherapy every Saturday ( no side effects) I try to keep a positive attitude. I Have 2 great kids & The Shruhan side of my family have been great! Everyone is here for u! Luv Susan,Alycia& Nick

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