Friday, June 28, 2013

Day 4 of treatments.

A slap in the face for sure...

It's day four and I really feel worse, unfortunately, than I thought I would this early on.  I guess that means the chemo is kicking ass which is good.  I was walking through the hospital going from the Dana Farber Center to the Yawkey center feeling like crap when a young girl no older than 1 year came by in a stroller with her mom.  It really ripped at my heart seeing her whispy hair and the drawn look on her face.  It just isn't fair, it just isn't right.  I know at that point it made my simple little case of self importance melt away.  The nausea I felt, the dizzy feelings seemed meaningless next to that little girl coming by on her way from radiation.  I have thought of her many times since I saw her and without knowing it she has become an inspiration for me.

You see a lot at this clinic that really puts things in perspective.  I have a beautiful and healthy family, extended family and friends, and a very positive outlook on the outcome of my disease.  There are way to many people that don't have any of this to fall back on.  I am now considering myself blessed with a small case of bad luck on the side.  I'll take that with all your support any day of the week.

I was able to make it into work yesterday for a few hours and tie off with my team.  Thanks for picking up the slack and even though I'm constantly reminded by my management team that there wasn't much to make up for, I know you guys are kicking butt and doing everything you can to cover.  I appreciate it very much.  It was good to see everyone again.  I only lasted till about 2:30, but since I was in Boston at 7am, it sure felt like a full day.

Denise is heading in with me today to look at a place to stay closer to the city.  I can't handle the travel already.  I didn't think it would get to me this quickly but holy cow did it ever.  The last few weeks they have a hotel near the hospital that has rates for patients so we are going to reach out to them today.

I am also bringing my Bob Seger CD to radiation.  Yesterday was Eric Clapton.  He's ok, but not when they are playing one long guitar solo for 10 minutes.  Too much of a good thing.  With Bob these sessions will fly by.  I have one nurse who never heard of Bob Seger.  First off, really?  Second, I promised she will like him.  All she knows about him is Tom Cruise danced in his underwear to one of his songs.  She wasn't impressed.  I told her that's his worst song ever so be ready.

On the negative side of things, day 5 and 6 I'm told is when the flu like symptoms kick in.  That sounds like a nice topper to the nausea feeling I have most of the day, even with the meds.

Please post your name with the comments you leave.  It's hard to tell on some of them who it is.  Lots of codenames.  Thanks for the posts, keep them coming, they are the best!

4 comments:

  1. You prompted me to look up Bob Seger and see what he's been up to these days. Did you know a 79-yo woman had been in a coma for 5 years, and when she woke up in April, her one wish was to see a Bob Seger concert. She got to go, and even went backstage! Maybe Bob will find your blog, know you're a superfan, and give you a private concert.

    Keep up the great attitude, Mark. We're not there in the room with you, but we're thinking of you every day.

    - Phil

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  2. After thinking about a 10 minute Clapton solo or an ancient Segar rif you've motivated me to rip you some tunes that were recorded in the last 35 years (hint...which might be why the nurse had never heard of him). How about a little Foo Fighters "Walk" or "These Days". Love the humor and attitude Mark, keep it up. And for your info, the management team does notice your absence, it appears the company margins have increased a few points. :).

    Keep kicking ass, and I'll see you at the crapy 'grill' line in the cafeteria in no time.

    Jay

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  3. Hey Mark, glad to keep up with your progress via these blog updates. I was up in Boston from Orlando this weekend and thought much of you, particularly as I went down to Gillette to go to the Hall of Fame. Well, if you have access to TV during your sessions, you surely have lots to see with the Hernandez crap. But, hey, how about those SOX....50 wins and counting as you know! Keep the positive attitude, I've heard that that is what gets your through such difficult times (but what do I know)!!! Go SOX!

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  4. Thinking of you very day Mark.. You are inspiring a lot of people with your bravery and positive attitude.
    You've got 1&1/2 weeks done out of 7.. Every day you complete is one day closer to the finish line!

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